Patients Should Own Their Data to Make Medical Care Better

With the government (partially) mandating Electronic Medical Records and sharing of data with patients and other healthcare providers, there is a lot of discussion about the ownership of healthcare data. While the vast majority of people think that the patients should own and control the data, health care community’s views differ.

When Dave deBronkart learned he had a rare and terminal cancer, he turned to a group of fellow patients online — and found the medical treatment that saved his life. Now he calls on all patients to talk with one another, know their own health data, and make health care better one e-Patient at a time.

David deBronkart, better known as “e-patient Dave,” was diagnosed in January 2007 with kidney cancer at a very late stage. Odds were stacked against him, with tumors in both lungs, several bones and muscle tissue. He received great treatment, and was able to fight through and win the battle over his cancer.  His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. View the TED video above and follow the comments below the TED post.

deBronkart is now actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. Check out his website for discussions and additional information.


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